He was moved to Valley Presbeyterian Hospital in Van Nuys yesterday. We've heard from everyone (not sure if they're just saying this) that its a better hospital, so that's good. If anything its a second opinion. The only drawback is we're kind of starting fresh.
I've been there all day today, didn't want to miss seeing the Dr's. A general Dr. and a Nuerologist came in. They haven't ruled out Guillian Barre but today Nuero also said Miller Fisher, which is essentially the same thing as GB. They are still treating him as if he has it, so.... We have no idea what's going on yet.
Tomorrow I will spend most of the day there as well. Hoping the nuerologist will send for more tests. I'm researching all day and trying to be a pain in the butt to get some answers. I don't know if its working or not. Hopefully tomorrow will be a better, more informative day for us since today was pretty much a waste. Not only did they move him hospitals yesterday, but they moved him floors early afternoon today. Which then we get a new nurse and we are asked the same questions "So what has been happening?" and then its wait, wait, wait.....
I'm trying to be patient...I pretty much have to be patient, it's no fun.
Will keep you all posted. Thanks again for the babysitting, meals, visits, texts, emails, thoughts and prayers and for all the things happening that I don't know about. THANK YOU!
This probably sounds bratty but Jill is handling all our meals and stuff like that right now so call her. I can't keep up with the texts anymore, sorry but I will try to post something every day to keep everyone informed.
This is just crazy.
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1 comment:
oh sweetie,I had no idea you had so much going on right now. Like everyone else, I'll be thinking of you all. <3
xoxox
Jackie
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